Wednesday, April 1, 2009
Brycen has kept his stats up without oxygen over night and we were released to go home. But, before we leave we wanted to get a swallow study done for the aspiration issue just to make sure he is ok. The good news is he may be able to slowly start taste pleasures (eating small amounts of certain foods of applsauce consistency) wich is awesome!!! The poor boy has had nothing by mouth but his passy for three whole years! I think he will really enjoy this! Although it will still have to coincide with his extremely strict ketogenic diet, but something is better than nothing! So we are sitting here waiting on the doctor (as usual) to post the results from the actual g-tube test and then we are blowing this joint!!!!!!! Thanks for all your love, support, and prayers!!!
Tuesday, March 31, 2009
Although Brycen is definately back to being himself he still requires just a little bit of oxygen. Last night they took the oxygen off his face at 8:30 and he did excellent untill he started really resting well and his stats were not so good. I was hoping they wouldn't have to put it back on, hoping so much that i asked the respiratory therapist if she had spoken with brycen's nurse about putting it back on! But we all dip down in numbers when we are sleeping, Brycen just isn't quite ready to ditch the tubes yet! We will try again tonight and see how it goes! Fingers crossed!!!
Sunday, March 29, 2009
Today Brycen has been off the oxygen for about two and a half hours and was holding his own but he still needs a little bit of oxygen to maintain the adequate level. He is starting to feel better and staying awake just a little bit longer. We are on way to making it home, but still need a little more time and supportive care. Hopefully it wont be long!
Saturday, March 28, 2009
Friday, March 27, 2009
Another good night with the by-papp machine and the doc says brycen's lungs sound better! They are also starting him back on his formula with continual feeding instead of pedialyte....which is more good news!! Although he will probably here a couple more nights things are looking better. Thanks for all the love and support and prayers and all that good stuff! It helps!!!!